Today is Rare Disease Day <- please take a look at their site.
Its main objective is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients and to reinforce their importance as a public health priority.
In our family we have a range of rare diseases. We don’t do anything by halves 😉 My dad has Sarcoidosis, my brother has Crohn’s Disease and I have Behcet’s Disease.
I meant to post this earlier but I’ve been IT Support for my dad today!
Reblogged this on Step Off the Beaten Path With Me and commented:
Very important…and I am several days late for reblogging this! Sorry!
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Lets hope that in the madness of the austerity idea that funds are not cut for research on rare diseases. xxx
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