Rare Disease Day

Today is Rare Disease Day <- please take a look at their site.

Its main objective is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients and to reinforce their importance as a public health priority.

In our family we have a range of rare diseases.  We don’t do anything by halves 😉 My dad has Sarcoidosis, my brother has Crohn’s Disease and I have Behcet’s Disease.

Rare Disease Day

I meant to post this earlier but I’ve been IT Support for my dad today!

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